Family Experience as Caregivers in the Rehabilitation of Stroke Patients: A Literature Review

Abstract

This study aims to summarize the research results on family experiences as caregivers in post-stroke patients’ rehabilitation processes. The method of this study used a literature review. Google Scholar and PubMed were used to find Bahasa and English articles examining families as caregivers of stroke patients. These studies were assessed using the JBI critical appraisal tools for Qualitative Study with a total of 8 factors used to the quality of the selected articles. Nine articles were reviewed with JBI scores of about 90-100%. This study found 327 articles, and after quality assessment of these studies, nine articles came to review process. The review process generated six general aspects that have been summarized by researchers representing all emerging themes, namely physical, psychological, spiritual, economic, social, and family effort aspects. The results of this literature review hope can be a reference or provision related to families as caregivers.


 


Keywords: caregiver, family, experience, stroke

References
[1] AHA. (2015). Heart Disease and Stroke Statistics 2015 Update. Retrieved from https://doi.org/10.1161/ CIR.0000000000000152.


[2] WorldNeurologyline.com. (2018). Retrieved 20th October, 2020 from https://worldneurologyline.com/ article/the-global-stroke-burden.


[3] Karunia., E. (2016). Hubungan Antara Dukungan Keluarga Dengan Kemandirian Activity of Daily Living Pascastroke. Jurnal Berkala Epidemiologi. vol 4, issue 2, pp. 213–224, https://doi.org/10.20473/jbe. v4i2.2016.213.


[4] Octaviani, R. (2017). Hubungan Dukungan Keluarga Dengan Kualitas Hidup Lanjut Usia Pasca Stroke Di Wilayah Kerja Puskesmas Gajahan Surakarta. Surakarta: Universitas Muhammadiyah Surakarta.


[5] Hesamzadeh, A., et al. (2017). Family Caregivers’ Experience of Activities of Daily Living Handling in Older Adult with Stroke: A Qualitative Research in the Iranian context. Scandinavian Journal of Caring Sciences, vol. 31, issue 3, pp. 515–526.


[6] Daulay, N. M. (2016). Pengalaman Caregivers Pada Pasien Stroke: A Qualitative Systematic Review. Jurnal Kesehatan Ilmiah Indonesia (Indonesian Health Scientific Journal, vol. 1, issue 2, pp. 49– 55.


[7] Fetriyah, U. H., Firdaus, S. and Lestari, L. W. S. (2016). Pengalaman Keluarga Dalam Merawat Anggota Keluarga Paska Stroke Di Wilayah Kerja Puskesmas Pekauman Banjarmasin. Dinamika Kesehatan. vol 7, issue 1, pp. 80-94


[8] Luthfa, I. (2018). Peran Keluarga Merawat Lansia Pasca Stroke Family Role to Care Post Stroke Elderly. Proceeding Unissula Nursing Conference, vol. 1, issue 1, pp. 62–69.


[9] Kadarwati, K., Ulfa, R. and Oktarina, E. (2019). Studi Fenomenologi: Pengalaman Keluarga Merawat Penderita Pasca Stroke di Kota Jambi Tahun 2019. Jurnal Ilmiah Universitas Batanghari Jambi, vol. 19, issue 3, p. 476, https://doi.org/10.33087/jiubj.v19i3.706.


[10] Tseng, C.-N., et al. (2015). A Qualitative Study of Family Caregiver Experiences of Managing Incontinence in Stroke Survivors. PLoS One, vol. 10, issue 6, pp. 1-12, https://doi.org/10.1371/journal. pone.0129540.


[11] Torregosa, M. B., Sada, R. and Perez, I. (2018). Dealing with Stroke: Perspectives from Stroke Survivors and Stroke Caregivers from an Underserved Hispanic Community. Nursing and Health Sciences, vol. 20, issue 3, pp. 361–369, https://doi.org/10.1111/nhs.12414.


[12] McCurley, J. L., et al. (2019). Preventing Chronic Emotional Distress in Stroke Survivors and their Informal Caregivers. Neurocritical Care, vol. 30, issue 3, pp. 581–589, https://doi.org/10.1007/s12028-018-0641- 6.


[13] Muthucumarana, M. W., Samarasinghe, K. and Elgán, C. (2018). Caring for Stroke Survivors: Experiences of Family Caregivers in Sri Lanka - A Qualitative Study. Top Stroke Rehabil, vol. 25, issue 6, pp. 397–402, https://doi.org/10.1080/10749357.2018.1481353.


[14] Lu, Q., et al. (2019). Living on the Edge: Family Caregivers’ Experiences of Caring for Post-Stroke Family Members in China: A Qualitative Study. International Journal of Nursing Studies, vol. 94, issue 22, pp. 1–8, https://doi.org/10.1016/j.ijnurstu.2019.02.016.


[15] Anderson, E. W. and White, K. M. (2018). “This is What Family Does”: The Family Experience of Caring for Serious Illness. American Journal of Hospice and Palliative Medicine, vol. 35, issue 2, pp. 348–354, https://doi.org/10.1177/1049909117709251.


[16] Gorelick, P. B. (2019). The Global Burden of Stroke: Persistent and Disabling. The Lancet Neurology, vol. 18, issue 5, pp. 417–418, https://doi.org/10.1016/S1474-4422(19)30030-4.


[17] Greenwood, N., et al. (2019). A Qualitative Study of Older Informal Carers’ Experiences and Perceptions of their Caring Role. Maturity, vol. 124, March issue, pp. 1– 7, https://doi.org/10.1016/j.maturitas.2019.03. 006.