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Mardhiyah, A., Suzana Mediani, H., Letcmi Panduragan, S., & Yosep, I. (2023). Psychosocial Problems on Adolescents with Thalassemia Major: A Systematic Scoping Review. KnE Social Sciences, 8(14), 229–242. https://doi.org/10.18502/kss.v8i14.13834

https://doi.org/10.18502/kss.v8i14.13834

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authors

  • Ai Mardhiyah

    Ai Mardhiyah

    Department of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Indonesia
  • Henny Suzana Mediani

    Henny Suzana Mediani

    Department of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Indonesia
  • Santhna Letcmi Panduragan

    Santhna Letcmi Panduragan

    Faculty of Nursing, Lincoln University College, Malaysia
  • Iyus Yosep

    Iyus Yosep

    Department of Psychiatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Indonesia

Published Date

  • Aug 4, 2023

Psychosocial Problems on Adolescents with Thalassemia Major: A Systematic Scoping Review

KnE Social Sciences / International Conference Health, Social Science & Engineering (ICHSSE 2022) / Pages 229–242

Abstract

Disease and treatment of thalassemia major that are carried out for life can cause physical and psychological problems in sufferers. Adolescents with thalassemia major will experience disturbances at a stage of development that is undergoing dynamic changes. Nurses, as health workers who provide holistic services, need to know what psychosocial problems may arise in adolescents with thalassemia major. This study aims to describe psychosocial problems in adolescents with thalassemia major. This study uses a scoping review design by searching English literature through the CINAHL, PubMed, and Scopus databases. The keywords used are psychosocial problems, thalassemia major, and adolescence. The criteria for the article in this study where the patient was a teenager with thalassemia, open access full text, and the time setting was the last 10 years (2013-2022). We found 9 articles discussing psychosocial problems in adolescents with thalassemia. Psychosocial problems that arise in the form of disturbances in several functions, namely physical, emotional, social, and school functions. Psychosocial disorders that occur in adolescents with thalassemia cause disturbances at the stage of adolescent development. Psychosocial problems that occur in adolescents with thalassemia include impaired physical, emotional, social, and school functions.


Keywords: adolescence, psychosocial problems, thalassemia major

References
[1] Husna N, Sanka I, Al Arif A, Putri C, Leonard L, Nur Handayani N. “Prevalence and distribution of thalassemia trait screening.” J Med Sci. 2017;49(3)106–113. 2017.

[2] Al-Zaazaai DAAM, Al-Tayar DAAK. “Growth pattern among Yemeni children suffering from Β thalassemia major in relation to serum ferritin the Yemeni Society for thalassemia and genetic blood disorder - Sana’a Yemen.” J Endocrinol Diabetes. 2019;6(3):1–7. doi: 10.15226/2374-6890/6/3/001136.

[3] Nashwan AJ, Yassin MA, Babu GDJ, Nair SLK, Libo-on IL, Hijazi HA, et al. “Quality of life among adolescents aged 14 to 18 years with Beta-Thalassemia Major (TM) in Qatar.” Acta Biomed. 2018 Feb;89(2-S):16–26. doi: 10.23750/abm.v89i2-S.7083.

[4] Shafie AA, Chhabra IK, Wong JHY, Mohammed NS, Ibrahim HM, Alias H. “Healthrelated quality of life among children with transfusion-dependent thalassemia: A cross-sectional study in Malaysia.” Health Qual Life Outcomes. 2020;18(1):1–11. doi: 10.1186/s12955-020-01381-5.

[5] Bagul S, Abhay, Porwal A, Jain M. “Psychosocial problems in thalassemic adolescents and young adults.” Chronicles Young Sci. 2013;4(1):21. doi: 10.4103/2229- 5186.108800.

[6] Srisukh S, Ongphiphadhanakul B, Bunnag P. “Hypogonadism in thalassemia major patients.” J Clin Transl Endocrinol. 2016;5:42–45. doi: 10.1016/j.jcte.2016.08.001.

[7] Shaligram D, Girimaji SC, Chaturvedi SK. “Psychological problems and quality of life in children with thalassemia.” Indian J Pediatr. 2007 Aug;74(8):727–730. doi: 10.1007/s12098-007-0127-6.

[8] Atwa ZT, Wahed WYA. “The impact of illness perception and socio-clinicodemographic factors on perceived quality of life in children and adolescents with thalassemia intermedia.” Pediatr Blood Cancer. 2019 July;66(7):e27735. doi: 10.1002/pbc.27735.

[9] Boonchooduang N, Louthrenoo O, Choeyprasert W, Charoenkwan P. “Healthrelated quality of life in adolescents with thalassemia.” Pediatr Hematol Oncol. 2015;32(5):341–348. doi: 10.3109/08880018.2015.1033795.

[10] Behdani F, Badiee Z, Hebrani P, Moharreri F, Hossein Badiee A, Hajivosugh N, et al. “Psychological aspects in children and adolescents with major thalassemia: A case-control study.” Iran J Pediatr. 2015;25(3):0–7. doi: 10.5812/ijp.25(3)2015.322.

[11] Sanders RA. “Adolescent psychosocial, social, and cognitive development.” Pediatr Rev. 2013;34(8):354–358.

[12] Elmwafie S, El Azzab S. “Study of the health instructions effect on quality of life and psychological problems among children with thalassemia.” Int J Stud Nurs. 2016 Oct;1:16. doi: 10.20849/ijsn.v1i1.92.

[13] Jabbarifard F, Sharifi T, Solati K, Ghazanfari A. “The effectiveness of acceptance and commitment therapy on perceived stress, resilience, and the quality of life in thalassemia major patients.” J Shahrekord Univ Med Sci. 2019;21(2):91–97. doi: 10.34172/jsums.2019.16.

[14] Perveen S. “Hope and health related life quality among thalassemic patients.” J Psychol Clin Psychiatry Res. 2019;10(2):73–76. doi: 10.15406/jpcpy.2019.10.00631.

[15] Mettananda S, Peiris R, Pathiraja H, Chandradasa M, Bandara D, de Silva U, et al. “Psychological morbidity among children with transfusion dependent β- thalassaemia and their parents in Sri Lanka.” PLoS One. 2020;15(2):e0228733. doi: 10.1371/journal.pone.0228733.

[16] Hassan SME, El Azzab SESHI. “Study of the health instructions effect on quality of life and psychological problems among children with thalassemia.” Int J Stud Nurs. 2016;1(1):16. doi: 10.20849/ijsn.v1i1.92.

[17] Pouraboli B, Abedi HA, Abbaszadeh A, Kazemi M. “Self-care in patient with major thalassemia: A grounded theory.” J Caring Sci. 2017 Jun;6(2):127–139. doi: 10.15171/jcs.2017.013.

[18] Septyana G, Mardhiyah A, Widianti E. “The mental burden of parents of children with thalassemia.” J Keperawatan Padjadjaran. 2019;7(1):93–100. doi: 10.24198/jkp.v7i1.1154.

[19] Peterson J, Pearce P, Ferguson L, Langford C. “Understanding scoping reviews: Definition, purpose, and process.” J Am Assoc Nurse Pr. 2017. doi: 10.1002/2327- 6924.12380.

[20] Bradbury-Jones C, Aveyard H, Herber OR, Isham L, Taylor J, O’Malley L, “Scoping reviews: The PAGER framework for improving the quality of reporting.” Int J Soc Res Methodol. 2021;00(00):1–14. doi: 10.1080/13645579.2021.1899596.

[21] Tricco Ac, E Lillie, Zarin W. “PRISMA extension for scoping reviews (PRISMA-ScR): Checklist and explanation.” Ann Intern Med. 2018;169(7):467-473. doi: 10.7326/M18- 0850.

[22] Elzaree FA, Shehata MA, El Wakeel MA, El-Alameey IR, AbuShady MM, Helal SI. “Adaptive functioning and psychosocial problems in children with beta thalassemia major.” Open access Maced J Med Sci. 2018 Dec;6(12:2337–2341. doi: 10.3889/oamjms.2018.367.

[23] Mansoor S, Othman Z, Othman A, Husain M. “A descriptive study on quality of life among adolescents with beta-thalassemia major in the Maldives.” Int Med J. 2018 Aug;25: 211–214. doi: 10.5281/zenodo.2588035.

[24] Atoui M, Badr LK, Brand TD, Khoury R, Shahine R, Abboud M. “The daily experiences of adolescents in Lebanon with sickle cell disease.” J Pediatr Heal Care Off Publ Natl Assoc Pediatr Nurse Assoc Pract. 2015;29(5):424–434. doi: 10.1016/j.pedhc.2015.01.012.

[25] Yasmeen H, Hasnain S. “Quality of life of Pakistani children with β-thalassemia major.” Hemoglobin. 2018;42(5–6):320–325. doi: 10.1080/03630269.2018.1553183.

[26] Mariani D, Mulatsih S, Haryanti F, Sutaryo. “Life experience of adolescents with thalassemia: A qualitative research with phenomenological approach.” Indian J Public Health Res Dev. 2020 Jan;11(1):1045–1049. SE-Articles. doi: 10.37506/ijphrd.v11i1.646.

[27] Batool I, Ishfaq K, Bajwa R. “Psychosocial burden among thalassemia major patients: An exploratory investigation of south Punjab, Pakistan.” Pakistan Paediatr J. 2017 Sep;41:158–162.

[28] Haraldstad K, Christophersen K-A, Helseth S. “Health-related quality of life and pain in children and adolescents: A school survey.” BMC Pediatr. 2017;17(1):174.

[29] Ishfaq K, DIAH N, Ali J, Fayyaz B, Batool I. “Psychosocial problems faced by thalassemia major patients of district multan, Pakistan.” Pakistan Paediatr J. 2018 Mar;42:23–27.

[30] Tarim Hs, oz F. “Thalassemia major and associated psychosocial problems: A narrative review.” Iran J Public Health. 2022 Jan;51(1):12–18. doi: 10.18502/ijph.v51i1.8287.

[31] Hakeem GLA, Mousa SO, Moustafa AN, Mahgoob MH, Hassan EE. “Health-related quality of life in pediatric and adolescent patients with transfusion-dependent ßthalassemia in upper Egypt (single center study).” Health Qual Life Outcomes. 2018;16(1):1–9. doi: 10.1186/s12955-018-0893-z.

[32] Bakhshi R, Akaberian S, Bahreini M, Mirzaei K, Kiani J. “The effect of group counseling on the quality of life in patients with major thalassemia referred to the thalassemia treatment center in Bushehr TT .” umsha-psj. 2018 Apr;16(3):11–19. doi: 10.21859/psj.16.3.11.

[33] Valizadeh L, Zamanzadeh V, Ghahramanian A, Hasani Narenjbaghi S. “Assertiveness in the patients with thalassaemia major: A qualitative study.” Nurs. open. 2021 Sep;8(5):2587–2594. doi: 10.1002/nop2.796.

[34] Thavorncharoensap M, Torcharus K, Nuchprayoon I, Riewpaiboon A, Indaratna K, Ubol B-O. “Factors affecting health-related quality of life in Thai children with thalassemia.” BMC Blood Disord. 2010 Jan;10(1). doi: 10.1186/1471-2326-10-1.

[35] Dhirar N, Khandekar J, Bachani D, Mahto D. “Thalassemia major: How do we improve quality of life?” Springerplus. 2016;5(1):1895. doi: 10.1186/s40064-016-3568-4.

[36] Sadek EH, Elsayh KI, Mohammed FZ, Mohamed NT. “E f f e c t o f a n e d u c a t i o n a l p r o g r a m o n s e l f - e f f i c a c y o f a d o l e s c e n t s w i t h t h a l a s s e m i a m a j o r.” 2019. pp. 72–85.

[37] Yengil E, Acipayam C, Kokacya MH, Kurhan F, Oktay G, Ozer C. “Anxiety, depression and quality of life in patients with beta thalassemia major and their caregivers.” Int Clin J Exp Med. 2014;7(8):2165–2172.