A Qualitative Study of the Experiences of Children With Cancer and How They Perceive Their Problems During Hospitalization in Indonesia


Children with cancer will find it challenging to participate in social activities, especially outdoor ones. This can lead to poor interpersonal skills, loneliness, and low self-esteem. Children who are diagnosed with cancer, particularly a terminal form, have a variety of requirements, including the need to communicate and discuss, as well as the need for social support to aid in coping. Thus, the purpose of this study was to explore the experiences of children with cancer and how they perceive their problems during hospitalization in Indonesia. The research used qualitative exploratory techniques with patients receiving treatment in the Dr. Sardjito Hospital’s Children’s Health Installation in Yogyakarta. Purposive sampling was used for recruitment. The picture codes approach with photovoice was applied for data collection. The data were evaluated conceptually, and emerging themes were substantiated by statements from participant interviews. Three themes emerged: painful medical procedures that traumatize youngsters, indoor facilities that provide comfort for children, and playmates similar to siblings. Developing the necessary support programs for these children involves meticulous planning and preparation, which must begin even before children return to school and involve teachers, health care providers, and family members.

Keywords: cancer, children, problems, hospitalization, qualitative study

[1] National Institutes of Health. National Cancer Institute (NCI); 2019.

[2] Arslan FT, Basbakkal Z, Kantar M. Quality of life and chemotherapy-related symptoms of Turkish cancer children undergoing chemotherapy. Asian Pacific Journal of Cancer Prevention: APJCP. 2013;14(3):1761–1768. https://doi.org/10.7314/apjcp.2013.14.3.1761

[3] Hockenberry MJ, Wilson D. Wong’s clinical manual of pediatric nursing. 8th ed. Elsevier Ltd; 2008.

[4] Dorothee A. Spiritual care and palliative care: Opportunities and challenges for pastoral care. 1998.

[5] Catlin A, Ford M, Maloney C. Determining family needs on an oncology hospital unit using interview, art, and survey. Clinical Nursing Research. 2015;25(2):209–231. https://doi.org/10.1177/1054773815578806

[6] Ji Y, Lacey N. Experimental transplantation and immunotherapy branch. National Institutes of Health; 2011.

[7] Doyle D, Hanks G, Cherny NI, Calman SK. Oxford textbook of palliative medicine. 3rd ed. Oxford Medical Publications; 2013.

[8] Coyne I, Murphy M, Costello T, O’Neill C, Donnellan C. A survey of nurses’ practices and perceptions of family-centered care in Ireland. Journal of Family Nursing. 2013;19(4):469–488. https://doi.org/10.1177/1074840713508224

[9] Binder, K., Ceperley, D. M., Hansen, J. P., Kalos, M. H., Landau, D. P., Levesque, D., ... & Weis, J. J. 2012. Monte Carlo methods in statistical physics (Vol. 7). Springer Science & Business Media. 2012

[10] Blazin LJ, Cecchini C, Habashy C, Kaye EC, Baker JN. Communicating effectively in pediatric cancer care: Translating evidence into practice. Children. 3018;5(3):40. https://doi.org/10.3390/children5030040