Disclosure Process on Parents with Children with HIV: Qualitative Study

Abstract

Background: The issue of the opening of the HIV status of children began to be considered essential for the health of children such as children is more enthusiastic about undergoing therapeutic treatment and this can reduce child mortality. In addition, disclosure of status to children can also help prevent transmission of HIV / AIDS to children’s friends. Children become more careful in their behavior. for what??. Disclosure is a long process and requires the preparation of children, parents, health care workers. Positive impact by opening the HIV status of children since the opening of the HIV status helps children cope coping.


Objectives: The aim of this study was to explore disclosure process on parents with HIV children.


Methods: This research is a qualitative descriptive study using narration. Conducted in May 2019 in Bandung City NGOs, with 6 participants determined by inclusion criteria Parents who were diagnosed with HIV positive, Having children who were diagnosed IV positive by snowball sampling techniques.Themethodofdatacollectionis45minutesof in-depth interviews and questions that focus on how parents reveal their child’s status to their children.


Results: The results of this study indicate that 5 out of 6 participants have revealed the status of children to children,5outof6parentshaveintroducedthe status of children from an early age indirectly by bringing to the clinic and community. and after the analysis process, four themes were found, namely the parents ’ignorance of the process of HIV transmission, the process of parental exposure to the child’s illness, the response of the child’s rejection to initial HIV treatment, and the parents’ feelings after revealing the child’s status.


Conclusion: conclusions in the study indicate that most parents have revealed the status of children of children, most parents have introduced their child’s status from an early age indirectly by bringing it to the clinic and the community.

References
[1] Ministry of Health. (2017a). Situation Report Progression of HIV-AIDS in Indonesia.
[2] Aiges, J. (2008). Factors related to caregivers’ disclosure of the diagnosis to HIV-infected children. Adelphi University, School of Social Work.
[3] DG, PP, & RI, PK (2014). Statistics HIV / AIDS cases in Indonesia. Jakarta, Ministry of Health, 1-3.
[4] RI, KK (2013). National Action Plan for the Prevention of HIV Transmission from Mother to Child (PPIA) Indonesia 2013-2017. Jakarta: Ministry of Health.
[5] World Health Organization. (2011). Guidelines on HIV disclosure counseling for children up to 12 years of age.
[6] Nguefack,HLN,gwet,H.,Desmonde,S.,Oukem-Boyer,OOM,Nkenfou,C.,Téjiokem,M.,...&Alioum,A. (2015). Estimating mother-to-child HIV transmission rates in Cameroon in 2011: a computer simulation approach. BMC infectious diseases, 16 (1), 11. [7] Hartati, S. (2005). The development of learning in early childhood. Jakarta: Ministry of Education.
[8] Aebi-Popp, K., Mulcahy, F., Rudin, C., Hoesli, I., Gingelmaier, A., Lyons, F., & Thorne, C. (2013). National Guidelines for the prevention of mother-to-child transmission of HIV across Europe-how do countries Differ?. The European Journal of Public Health, 23 (6), 1053-1058.
[9] Brou,H.,Djohan,G.,Becquet,R.,Allou,G.,Ekouevi,DK,Viho,I.,...&ANRS1201/1202/1253DitramePlus Study Group. (2007). When HIV-infected women do disclose Reviews their HIV status to Reviews their male partner and why? A study in a PMTCT program, Abidjan. PLoS medicine, 4 (12), e342.
[10] Madalazi, P., Bandawe, C., & Umar, E. (2014). HIV disclosure: parental dilemma in informing about HIV-infected children in Malawi Reviews their HIV status. Malawi Medical Journal, 26 (4), 101-104.