Family Experiences of Getting Tuberculosis Diagnosis


Background: Children who living in tuberculosis (TB) household have a high risk to be transmitted by TB, that become the main reason for those children to be given TB prevention.DiagnosedbyTB,isanentrypointofthefamiliestobeawareoftheriskof TBtransmissionandtheneedofTBprevention,especiallyfortheirchildren.Objectives: This study aimed to explore the family experiences of living with patients diagnosed with tuberculosis.

Methods: A qualitative study was conducted from December 2016 to July 2017, among fourteen family caregivers whose a previous adult active-TB and have children living in same households. The key participants were recruited from a lung clinic Bandung-Indonesia and followed up to their home. Data were gathered by in-depth interview. Each interview took 40-90 minutes in the informant’s home. Data were analysed by content analysis.

Results: Most families experienced TB diagnosis delayed. They did not notice initial TB symptoms, felt inconvenience with the health care services, and travelled around for the right diagnosis.

Conclusions/Importance: ThisstudyhighlightedimportantearlygettingTBdiagnosis, therefor nurses and other health care professionals should enhance family’s knowledge and awareness to TB symptoms and the health care services system, in order to improve family awareness to the risk of TB transmission. Moreover, strengthening of the health care services system is needed to improve the effectiveness and quality of TB diagnosis.

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